Deaths from mesothelioma and other rare cancers now account for more than half of the cancer deaths in the UK, even though they make up less than half of those diagnosed.

A new report from a British organization that represents rare cancer charities says cancers like mesothelioma now account for 54% of cancer deaths in the UK – a new high for the country. You can read the report from Surviving Mesothelioma on their website here.

Using data from England’s National Cancer Intelligence Network, Cancer52 says people with less common cancers like mesothelioma account for just 47% of cancer diagnoses, but have outpaced the ‘big four’ cancers in deaths.

“This disparity perfectly illustrates the challenges faced by those diagnosed with a less common cancer. At every stage of the cancer pathway from diagnosis to access to treatments, everything is more difficult,” said Cancer52 interim chair Clara Mackay.

Mackay and her colleagues blame under-recognized symptoms, fewer treatment options, lack of research funding, and “less innovation” for the disparity in cancer deaths.

“No matter where they live, most mesothelioma patients have known the frustration of trying to get a diagnosis and decide among limited treatment options,” says Surviving Mesothelioma’s Managing Editor, Alex Strauss. “Unfortunately, many of the rare disease challenges cited in this report will be familiar to mesothelioma patients in the U.S. and elsewhere.”

To read the Cancer52 report click here

If you or a family member has been affected by mesothelioma please contact us today on freephone 0800 294 3065 or talk to us on live chat.